Resources

RESOURCES

STAYING ORGANIZED

  • Checklist for the First 21 Years – a checklist created by the Special School District of St. Louis County to help with the years leading up to transition
  • “Transition Tool Kit” – a guide created by Autism Speaks to assist families with the transition from adolescence to adulthood
  • “SSD Transition Guidebook” – guidebook made by the Special School District of St. Louis County to help with the move into adulthood
  • Find Your Parent Center – a list compiled by the Center for Parent Information and Resources of the parent training and information centers in the United States
  • State Agencies – an interactive guide that provides the contact information for the intellectual/developmen- tal disability agencies in each state created by the National Association of State Directors of Developmental Disabilities Services

PERSON-CENTERED PLANNING

  • It’s My Choice… by William T. Allen, PhD – a workbook for helping your child think and talk about her future
  • Guiding Your Teenager with Special Needs through the Transition from School to Adult Life…by Mary Kopi

KNOW YOUR CHILD’S RIGHTS

SIX SIMPLE THINGS

  • Parent Transition Survey – created by Transition Coalition, this survey allows parents to take stock of what they already know when it comes to their child’s transition

A SUCCESSFUL INDIVIDUALIZED EDUCATION PROGRAM

  • “Your First IEP” by SchwabLearning.org – prepared for the San Francisco United School District, this guide provides step-by-step preparation for the IEP and work sheets to help you prepare for the meeting
  • NSTTAC Indicator 13 – intended for the school district to use, the National Secondary Transition Technical Assistance Center created two checklists (A and B) that help to make sure an IEP was completed  in accordance with IDEA
  • Ten Common Mistakes – a look at ten mistakes parents make during their child’s IEP

DIPLOMA OPTIONS

  • “Diploma Options for Students with Disabilities” – compiled by the National Center on Secondary Education and Transition, this briefing provides an overview of the different diploma options and the benefits of a state offering multiple options  versus one option
  • “Diploma  Options and Graduation  Policies for Students with Disabilities” – created by the National Center on Educational Outcomes, this guide looks at the positives and negatives of the different diploma options, helping to make a decision on which is best for your child
  • “Graduation Requirements and Diploma Options for Students with Disabilities: What Families and Advocates Need to Know” – published by the US Department of Labor, this informational brief examines the different diploma options and the need to align IEP goals with postsecondary goals concerning a diploma

LOOKING FOR A COLLEGE

  • Colleges with Programs for Students with Learning Disabilities – a list of colleges in the United States that pro- vide programs for students with disabilities; includes links to the specific program pages on the college’s website

TRAVELING WITH YOUR CHILD

  • Children with Disabilities – TSA travel  information about their accommodations when you travel with your child
  • Travelers with Disabilities or Medical Conditions – TSA travel  information specific to travelers with autism or an intellectual disability

SEEKING EMPLOYMENT

  • Vocational Rehabilitation Agencies – a list of the VR agencies in each state
  • “Getting the Most from VR” – an article that discusses how you can get the best out of VR agencies
  • Best Buddies Programs – a master list of all the Best Buddies programs, specifically for colleges, high schools, and middle schools around the world and a description of the different programs that Best Buddies offer (click on your state in the left sidebar to see all the programs located in your state)

DAY PROGRAMS

  • Services for Younger Adults – a page with information about the day programs offered by Easter Seals

FULL-TIME HOUSING

  • When Choosing a Home – a work sheet created by the Regional Center of Orange County in California to help you and your child look for full-time care; it provides questions that are helpful to ask when searching
  • State Associations of Independent Living – a list of the contact information for state independent living cen- ters compiled by Independent Living Research Utilization
  • Choosing a Residential Service Provider – a guide to residential options for people with autism created by the
    Foundation for Autism Support and Training

HEALTH AND MEDICAL CARE

  • Moving from Pediatric to Adult Healthcare – a compilation of resources on how to create a smooth transition to adult health care
  • “Working While Disabled” – a brochure on how your child can work and continue to receive Social Security benefits

LEGAL DECISIONS

  • Legal Matters to Consider – a look at the legal matters a parent needs to consider when deciding whether to become a guardian, conservator, or other for an adult child; provides questions and scenarios to consider in the decision-making process
  • The Special Needs Trust – an article by Richard W. Fee about questions surrounding the special needs trust for the National Institute on Life Planning for Persons with Disabilities

TALKING WITH SIBLINGS

  • The Special Needs Trust – a guide from the National Institute on Life Planning for Persons with Disabilities on the process of creating one of these trusts
  • Sample Letter of Intent – a sample version of a Letter of Intent to help you with writing your own
  • What to Record – a list of topics to document for future caregivers
  • My Special Life – a workbook from Protected Tomorrows where you can document the important information in your child’s life
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